I joined the forum because like many others I needed to be well armed with information before we waged war. It's in my makeup. I told Steve I would be by his side through everything and I felt to be the best support to him I had to know as much as I could before we arrived at each point. And to be honest, I was scared. Terrified to tell you the truth. I was looking for someone I could talk to that could relate to how I felt because there isn't another person I know personally that does. But here I found some arms to hug me and keep me going. All of which has helped me to stay strong for Steve.

As for Steve. Well he's not on here and I doubt very much he ever will be. He rarely talks to me about OC let alone coming on here and speaking to people via the forum's. Steve doesn't like to talk about OC. He says it's hard enough living with it so why make it harder by talking about it all of the time. He just accepts things, in other words why talk about it if you can't change it. . As long as I've known him (22) years he has always held the belief that if you think you are sick, then you will get sick. And up until he got OC he had, had 1 head cold in 22 years. So to me, he ignores OC as much as he can. Pretend it isn't happening and it will go away. Mind over matter, but something appears to be working for us. So will he ever get on the boards? No. He knows if he needs to know anything that I will find the answers. Other than that he doesn't need to know. He's happy just living his life, trying to be as normal as he can be and trying to forget that OC has changed our lives forever.

Also, in a way I don't really want Steve to be on the boards, although I have told him about them and encouraged him to look and learn if that's what he wants. I worry that he will read things that will upset him. Things that he may never ever go through, that may cause him stress just by knowing of them. Call it a protective part of me but he has enough to deal with. And another reason is that sometimes it's nice to know there is somewhere I can come just to get it all out. Without fear that my feelings and fears are going to upset him.

Besides, he's too busy playing computer games to ever get on any forum. For him thats what computers are for smile

Last edited by WendyG; 04-24-2011 04:00 AM.

Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.