thanks Kristen, I just wondered from the "experts"...those who have BTDT! I'm not pushing him to swallow but offering once a day. Some days he tries, some days he doesn't want to.

He opened the blinds today and is letting sunshine in! He didn't do that when he was healthy.

I've gotten 20+ oz of water in him and we have done half of the boxes of formula. I wanted more syringes but you have to get a prescription to buy them from the only Hammer Medical Supplies within an hour of me. I requested a prescription from the nutritionist. Filling a couple of tubes over and over is getting old since we do this 4 times a day.

His mind is still confused but he looks better and is sleeping so much less.