There is no one keeping tabs on him from the medical community until 4 weeks from now when he gets a CT scan. We are an hour from the cancer center and 45 minutes from the hospital.

I'm just as worried about the lack of fluids as the food issue. It's unbelievable that he has had little pain. He said it's a 2 on a scale of 1 to 10 at the worst 3-4. The difference in him after the IV fluids was always amazing and he knows that. They preached to him (docs, nurses, etc) that his healing is dependant on him complying and getting the fluids and nutrition in his body. This fact alone makes me wonder if he comprehended what they were saying or if he even realizes how little he is taking in. Hard to say.

I'm thinking of having the nutritionist call him as he has a bit of a voice right now and could probably talk/listen to her. He's not going to listen to me but maybe just maybe he might listen to her?


ETA: he ate the cheesecake, another yogurt. small steps.......



Last edited by ConnieT; 10-07-2018 04:30 PM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free