 Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | Definitely not laying down! I slept on the sofa at that point because I could use all the pillows in the house to prop up to a decent angle, (We don't have a recliner or I would've used that.) The bonus was, I got the TV, and the kids got to hang out with me late into the night, LOL. I had trouble tolerating nausea meds (gave up on those first week, and now have an allergy to one), and trouble tolerating the formula. It really messes with your head and makes you not want to eat. Hydration is more important right now. Yeah, it slows his healing, but at some point his stomach will settle and maybe there will be a food or supplement that will sit more lightly for him. Baby steps. There's no time frame to have to heal by. (That's for him, not for you...) It happens when it happens, and forcing it won't work ... giving up won't work either.
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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