Hi Cheryl,
Wow...your words hit home. We are 2 years out from dx and so far free from a recurrence, but there is still a distance between us. I cannot even imagine how hard this is on you because it sounds like our husbands are very similar. Pride is a very hard thing to break. Kevin has already said that if he has a recurrence he won't do any tx again. I just said ok, because he can't really say that until he is in the situation. I can picture him refusing to go out with a walker too. I don't know what it is about some people but I think it is fairly common.
I am so glad you have found us and let us into your home so to speak. I know how lonely it can get. I found these forums our last week of radiation and have been here since. I received so much info and support those first few months. I was completely lost and writing here in the forums helped me to learn what we were going through was completely normal. We really have become an extended family for each other, and now you are a part of our family too.
I know everyone has given you tons of advise so I won't go there. I just want to say keep coming here to vent, we really do understand completely. I do agree a heart to heart with your husband might help. You can get firm, or cry, but I know with Kevin neither would work. Hopefully it will for you.
Will be thinking of you and praying if that's ok.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14