 Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Welcome to OCF, Cheryl.
Your message comes through with absolute clarity and piercing emotion. You have lived with this situation for some time and clearly have learned a lot from others and each other as you have a very good objective perspective on your situation.
I so wish I could offer you something tangible or some insight or some options to explore but you are far more aware and educated than I dealing with your situation.
You did not explicitly mention hospice but I assume that they are fully engaged to support and assist you both. If they are not involved, reach out to them now. There are so many reports of the positive support they bring to those in your situation.
Please do stay here now as many others have a lot of experience to share and help. Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | 
