The wife of an OC patient posted this in February 2010 after her husband was diagnosed by an ENT. Since they live in New York City, several people here encouraged her to seek a second opinion for her husband at Memorial Sloan-Kettering, one of the top cancer centers in the U.S. She posted this after making an appointment there:

[quote=SusanW]The ENT guy said his practice (three guys) sees about one case of oral cancer a year. Sloan sees 3500. A bit of a difference. The strong message you guys sent me about where people should go is so important. I hope the word is out there.[/quote]
At the very least, get a second opinion from a large comprehensive cancer center (CCC) that sees a lot of cases of oral cancer; in Minnesota you've got the University of Minnesota Masonic Cancer Center and the Mayo Clinic Cancer Center, both NCI-designated CCCs. You may find that the treatment plan you get there is consistent with what St. Cloud is saying, or you may get recommendations that your local facility just isn't aware of because it either doesn't see a lot of cases or passes more complex cases off to CCCs. The local docs can help with arranging for a second opinion (and if they are hesitant, you should not be treated there), or you can call and make the appointment on your own. You do not need to ask their permission to get a second opinion.

Also, you can see the NCCN treatment guidelines here. And if you haven't done so already, look through the main part of the OCF website -- there's a lot of useful information there.


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.