Thanks, Anne and Brian. You make excellent points.

But I see from those statistics you linked, Brian, that I was under a misconception that once you make it to five years your odds of staying in remission get better. They continue to go down. Is that right? The first figure on page 5. No one in the study who's HPV-negative lived longer than 15 years, and about 14% of those HPV-positive are still alive at the end of the 17-year study. I haven't been told I have HPV, so I think I'm negative. However, those numbers study only 261 people so is hardly comprehensive.

Well, finding the answer didn't brighten my day, but I'm glad for any information. I'm the sort of person who's bothered by not knowing something, more than by knowing that it's bad. I will continue to fight my hardest, and hope that I'm one of the very few, and do what I can to make it possible that I can be.


-Ben-
Diag 12/21/11
T3N2bMX
Surg 1/17
5cm tumor left tongue pos. L tonsil neg. 17 l. neck lymph nodes, 2 pos w/extranodal excursion. 4 teeth neg
Tongue spec 5.9x3x1.8cm. Margins clear to 0.4-0.5 cm
2/20-3/27 27 radiation, 2/20-4/12 3 chemo.
Non HPV, lifetime tobacco, drugs, alcohol teetotaler