Nelie,

I am glad to hear things are at least moving forward. The end result is often different than the desired result but stagnation never solves the issue(s). It has been said that time heals all but the truth, in my opion, is that time does nothing without some effort (on both parts). You are so right, this is a lonely disease. Even in the arms of those you love the most, there is still a sense of loneliness when the disease implications enter the thought process. Life is never the same as before cancer but it doesn't have to be different than what you want it to be...you just need to have the resolve to make it that way! As Jimmy Valvano historically said, "NEVER GIVE UP".

Kind regards,

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023