I am so glad the appointment went well and she seemed reassuring. That's a good start. I still wish you had answers of some sort, but at least the probability of its being cancer is continually going down because they just aren't seeing it.

Random question ... do you deal with migraine issues? It's something I read up on, and I'm learning more and more of my weird health problems can be associated with my migraines and not just relics of my cancer treatments ... it's been interesting. The one that caught my attention recently in an article had to do with ear and jaw nerve pain, which just jumped to mind when reading your post. (That poor trigeminal nerve gets all sorts of trouble.) Anyway, it's something else you could ask about... it sends pain signals all kinds of ways.

((hugs)) Hope the next appointment goes well too!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery