OP  Senior Member (100+ posts)
Joined: Mar 2014 Posts: 110 | I keep mixing up the numbers for these studies. It's BYL-719, not 117 or 119. No head for numbers here.
Cheryl,
They have confirmed the growth and, because biopsy is so risky, they are using the percentages to assume mets from the original source. If they can't biopsy (and currently my ENT and the pulmonologist they brought in don't think they can) then we will be proceeding under the assumption. It's not my ideal methodology, but we recognize their model is probably correct.
Either way, it appears to have doubled in size form ~1 cm to 2cm in 6 weeks so it's definitely not going away.
Thanks!
The Hellion
SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!
**update** passed away 3/26/16 RIP, you will be missed by many
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