I am praying and rooting for you!!! Thank you so much for these updates as most likely soon, I will be attempting my own journey of immunotherapy trials and tribulations. Ill find out soon if the Erbitux is still working. Two weeks ago I spent a few days in the hospital for another recurring neck infection and immediately after my Erbitux infusion last week I went on a solo trip driving over 4000 miles round trip with a utility trailer to load up some of my parents belongings in order to help them with their move. Did all this while on IV push antibiotics through a PICC line, done in the cab of my truck at rest stops or truck stops. Lucky I never was hassled by the cops thinking I was pushing some other drugs through my veins. ha I also found one of the titanium screws that should be in my jaw holding something in now sticking out from under my chin a few millimeters while i was driving. seems that hardware has failed and is being pushed out of my body. Will need to have that looked at soon. I am trying to not let this slow me down too much. There are days upon days that I am stuck on the couch, but the people here show me so much strength that I have to give it my all when I can. Back to Erbitux infusion tomorrow and hope for the best. Thank you Hellion and Thank you everyone else who is fighting or taking care of those who do.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health