Hellion,

I want to suggest that you consider looking at the clinical trials going on at NIH. There are immunotherapy trials for metastatic cancer like:

https://clinicaltrials.gov/ct2/show/NCT01967823?term=NIH+immunotherapy&rank=6

There are also HPV immunotherapy trials going on too:

https://clinicaltrials.gov/ct2/show/NCT01585428?term=NIH+immunotherapy&rank=3

Another thought is to have your tumor sequenced and find out what the mutations are and then choose a drug or clinical trial that targets your tumor's particular mutation. We paid for the cost of this sequencing out of pocket as insurance won't cover it. It ran about $5k and the outfit we used was Foundation One.

I have a friend who has metastatic melanoma and was given 3-6mos to live and is still going at 4.5yrs. There is still cancer there but he's stable and enjoying life. And I read about people in the Washington Post who are clean. They did these NIH immunotherapy trials and were lucky.
Good Luck.



Amber
Caregiver to 63 yr HPV+, BOT SCC, T2-3N2cM0,
Dx 9/6/12, Tx 10/12- 12/12,
Cisplatin x3, 35 x IMRT;
PET 12/15/12 Clean
PET 3/14/13 Clean
PET 9/17/13 removal of lymph node mediastinum bx HPV+,
10/13/13 SBRT 5x area around node
PET 1/6/14 -clean
CT 6/14 -suspicious
CT 11/14 - 5 spots confirmed
12/14- chemo
CT 1/15 -stable
CT 3/15 -chemo ended; mixed results. Some spots better but new one appeared also in left pleura