So today we begin. I will try and post at least every week or so to describe the process in case it should come up for anyone else. I was randomly selected into the group that receives the experimental from the outset which is good so I took my first dose today and will take it every day from now until....?
The side effects of the study are expected to be light and mostly related to the Cetuximab/
Erbitux (which I will henceforth refer to as
Erbitux). The study will continue until:
1) It is determined it has no effect (this happens in some percentage of people but the study has not yet released those numbers)
2) The side effects reach a point where QoL becomes something we have to discuss
3) Something better comes along or I am miraculously cured
For what it's worth, I am quite hopeful that this is a miracle drug and that weekly infusions are as bad as it gets for at least some length of time to be determined.
And so it goes....