So today we begin. I will try and post at least every week or so to describe the process in case it should come up for anyone else. I was randomly selected into the group that receives the experimental from the outset which is good so I took my first dose today and will take it every day from now until....?

The side effects of the study are expected to be light and mostly related to the Cetuximab/Erbitux (which I will henceforth refer to as Erbitux). The study will continue until:
1) It is determined it has no effect (this happens in some percentage of people but the study has not yet released those numbers)
2) The side effects reach a point where QoL becomes something we have to discuss
3) Something better comes along or I am miraculously cured

For what it's worth, I am quite hopeful that this is a miracle drug and that weekly infusions are as bad as it gets for at least some length of time to be determined.

And so it goes....


SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many