Well we met with the RO and the spot was definitely not there the last time so things look poor. We have a meeting with the chemo oncologist today but I think that may be less important than it was. We'll see what the CT scan says but at this point my RO feels like we're in the palliative care mode. We are going to get our diagnostic CT on the 26th and get second opinions, but at this point it looks like we're kind of screwed. QOL is so important to us -- that said, I'm very likely willing to give the curative path a shot if they're willing to shoot.

Another day of tears, another day of imagining leaving my beautiful, wonderful, amazing wife and it hurts. Fingers crossed that the CT shows something positive or at least curative, but with Wednesday's consult, a door closed -- there are a few windows left open in the room, though, and maybe we can slip out of one of those before this thing notices we've even moved haha.

The Hellion


SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many