tamvonk, Uptown

I'm working with my University Hospital now in addition to my CCC -- it's reportedly one of the finest research universities in the country, so I have THAT going for me.

Nothing has been decided yet. The good news is it's "low volume" and "growing moderately" so they are taking a little time to piece together advice and recommendations. The research doctor (yes, he's a salesman) wants me to start a bit lighter and stick to biological agents to start --- he says there is time for the bigger guns if these (Cetuximab and then adding an experimental blocking agent) don't show good promise. We know from my previous treatment that I am not a great candidate for Cisplatin.

I hope he's right.

As I said in an earlier post, my life, my tumor, I kind of want the Minuteman Missile approach, but that may just reduce my QoL for very, very little gain anyway. What I need, what all of us need, is a wonder drug! We actually have pills to cure restless leg syndrome but this continues to beat us?

Yeah, cheap shot, I know, but still... I can't help but think this is more important -- I know it is to me (and I know they ARE researching this every day -- I'm just feeling a little bit bitey today).

So yeah, we're gathering a bit more data, hoping they can do a biopsy (find that out tonight) and that either way they can recommend some experimentals that might actually make a meaningful difference. I'm not ready to quit yet, so I'm pretty much insistent they come up with something. Thank you all for your support, advice and words of encouragement.

The Hellion