Hi Hellion, I was just going to write this response to your post when I saw the flashing envelope. Thank you for keeping us in mind. At our end, we are seeing our MO tomorrow for results of the first scan, so I will post when I know.

During John's first clinical trial, the MO allowed him to continue with the trial even though it showed progression in the first couple of scans. I think it was to give the drug some time to work.

This time around, before John even started on the second trial, the MO mentioned the new trial which has since been posted under the thread "Second Clinical Trial" on this forum. It is MEDI4736 in combination with another drug. This may well be John's next trial if the present one does not work. You may want to go to that thread and read up on it if you are interested. Our doctor, like yours, has things all figured out and seems to have some kind of master plan.

Your wife has hit the nail on the head: indeed, we don't know what we don't know and there is no point fretting about it.

By the way, the trial drug John is presently on is Selinexor (phase 2). If that is what they are going to offer that to you, I would be most happy to share our experience with you.

Keep well,

Last edited by gmcraft; 06-08-2015 11:16 AM.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.