So...

For those following, there have been a few changes. The first is, a second tumor popped up which was easier to reach than the first and thus they were able to perform a biopsy which confirmed it is SCC cancer. I have been working with my local university and will hopefully be beginning the Cetuximab + BYL719 study this week or next.

This experimental is a protein inhibitor which makes it more difficult for some cancers to grow -- this is considered a good candidate cancer for the study. My Oncologist a the university believes this is a good 1st line and that he would have some 2nd or 3rd line options, some of which involve some immunotherapy experiments, when that time comes before we have to go with the SoC stuff.

None of these are considered curative, but there is hope they can greatly shrink the tumors and inhibit their growth considerably thereby buying decent time with a good QoL.

Wish me luck. I'll post more when I have more.

Thanks,

The Hellion

Last edited by TheHellion; 01-19-2015 01:11 PM.

SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many