Hellion, I haven't weighed in because, frankly, it sucks to hear the news. I, too, think of your family and can't imagine what you are experiencing. AI even shed a few tears for you.

There is nothing in life I know that has been worse than seeing doctors that stop looking you in the eye to tell you how sorry they are. I stopped counting in double digits about 4 years ago.

If there's anything I can do, let me know. If you want to get a second opinion around here or Houston, I would be glad to help make that happen.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023