 "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | There are those on the board who have had total glossectomies and do just fine. I have only about 1/8 of my tongue left and I too am coping well.
You mentioned what the chances of success were for the cyberknife but you didn't say what was expected from the extensive surgery - success % wise, but I am sure you will consider all the options carefully. When is the planned surgery?
You're right - life changes and we adapt. We are here to help you cope with whatever adaptations you two might be making.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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