My OCF Friends,
I am very low tonight. We met today with the oncologist. Both of Ron's biopsies came back positive, so this is his second recurrence within 4 months. His prognosis is not good. The Dr. said that without tx he would have 3 months. With tx, probably a year. He is starting Erbitux this week, and will stay on that indefinitely, as long as it's working. If it stops working, we move on to a clinical trial. He says that radiation would do no good at this point, since the cancer is widespread, and not localized. He has Perineural invasion, which I guess is like a scaffold effect for the cells to proliferate more quickly. Ron is, as ever, confident and ready to face it. I, on the other hand, am scared out of my mind. I know all of you have faced this with such grace, I just wish I could as well. I am not writing any of this on my blog, at least yet, because my "kids" read it, and I don't want them upset at my negative attitude. I just feel like I am going to lose my husband much too soon, and I don't know how to deal with that.
Lori

Last edited by lorileona; 12-15-2008 07:52 PM.

Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer