Quick update all:
Turns out the PET was not exactly correct (as many of you said it might not be!). The Thyroid scan came back clear, as did the colonoscopy. There are some good things! However, the RO would not agree to start radiation of any kind until and unless he was SURE there was active cancer. He sent Ron back to the surgeon for a biopsy of the nodule under the tongue. The surgeon would not do a biopsy, instead Ron had another surgery on Monday, the 8th. When we went in, we thought there was just that one area, but once the surgeon was in there, he found another area on the side of Ron's tongue. Same side as the first time. So he sent a biopsy of each spot. We got the results today only from the tongue lesion and it was positive for SCC (AGAIN)! We will probably hear about the other site tomorrow. I want to thank all of you for your replies and thoughtful comments. I am thinking more and more that we need a second opinion on course of treatment from now on. I will let you know what else happens, and I wish all of you both with the disease and the caregivers around you the very best!
Thanks again,
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer