OP Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | Oh, you people are like a (good) shot in the arm for me! Today we met with the RO up at St. Luke's and Ron IS a candidate for the Cyberknife. His best option is still a second salvage surgery, but if he decides he does not want the surgery, he can do 5 Cyberknife treatments and have about a 60% chance. The surgery would again be extensive (we met with the surgeon following the RO), this time his entire lower right quarter of his mouth would be removed and rebuilt, using hip bone this time. The surgeon also said that he would have to take at least half of his remaining tongue, which would leave him very little. There is the possibility that he could need a total glossectomy, but he won't know for sure until he gets in there. I think Ron is thinking hard about what he will accept. I know that he wants to live, he just needs to come to grips with what life may be like after surgery. I told him I am with him no matter what. I can handle taking care of a trach and a PEG tube, etc. None of that bothers me at all. I just want him here. Life will be different, but it will be LIFE and that is all that matters. Happy Holidays to all of you! Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer |