Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Sorry you were both disappointed about the CyberKnife.
Lori, when I suspected this would be cancer again, I ran through the options as I saw them and concluded I would continue to lose body parts rather than surrender to the cancer. I was glad to find out that there was a step or two between now and losing my entire tongue and swallowing and tasting.
Life with a PEG is better than no life at all -- I know a family where the mother is deaf and has a hard time speaking -- There are plenty of people who can't walk and others who are blind -- Not being able to enjoy food is actually pretty easy compared to what they have -- Flexibility and adaptation are the keys to something like this.
If this were happening to David, I can see him biking up a storm with his hydration pack fixed to his PEG!
All I have to do is sleep through the part where I pay Dr Haakenslash and his Cutthroats to hack away and sew, then endure a night in the ICU (Intensely Comfort-Unfulfilled), then some good pharmaceuticals, then endure the physical therapists, then come home and recuperate, with my NetFlix subscription jacked up a little. It's still a lot easier than enduring radiation!
What we sometimes blurt out is not what we will decide when the time comes! Would you guys, singly or together, benefit from some therapy, either human or some anti-anxiety meds?
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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