Christine,
Thank you so much for your reply. Yes, 3 years ago he had a PEG tube. It stayed in until 5 months after his treatments ended. I am so glad he had that in, it really saved his life. At this point, the doctors are only talking about putting in a feeding tube through his nose, just for the duration of his hospital stay. I'm sure if he has chemo and radiation again, they will suggest the PEG again. Or if they don't, I will!

His chemo doctor has already said that he will for sure have some type of chemo again, but he is consulting with the radiation oncologist about the possibility of re-radiating. 3 years ago, he was told he could never have radiation again, so I don't know what that decision will be. Does it matter that back then, the radiation was to his tongue and right neck, and now the site would be his right cheek and possibly right jaw?? I'm not sure if that matters or not, but those beams are so precise it wouldn't be radiating the same exact places.

Yes, right now the new lesion is being called a Stage II, simply because of its size. Since they won't know for sure if the bone is involved until surgery, the stage may change after that. He had both PET and CT scans done last week. The only thing that showed up was the lesion in his cheek, so no mets anywhere else, thank God. I haven't read about Karen M's husband yet, but I sure will.

Your story gives me hope that they will get in there, and it will be only his cheek involved. Thank you so much for your kind words and advice. I will be coming here many times in the next weeks and months. The advice and support here is unmatched.

Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer