 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lori,
I know it's tough right now but it is what it is and you both need to go into a fighting mode. Leave the sorrow behind and focus on beating this cancer anyway you can. At 56 he has plenty of years left and if he has to do without his tongue then that's way better than the alternative. I didn't have to have any surgery so it's easier said than done in my case but many others have done what he might have to have done and have been able to manage so please encourage him to talk to us or any support group that he feels comfortable with. I have seen many that opted not to continue treatment and none have survived so please continue fighting as long as their are options.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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