Hello all,
Long time no write. Ron's surgery was on Feb. 2 at UW-Madison. He was just released last Wednesday, the 18th. Nine days into the hospitalization he had to go back to surgery due to an infection and ended up losing his new metal jaw, along with quite a bit of the scapular flap tissue. His jaw will not be rebuilt. He is now doing well with a trach and PEG. Swallow study will be in a few weeks. Many good things have happened also. He still has some tongue left and all of the nodes that looked "funky" came back negative! We are hanging in there, and getting used to our new schedule. One very nice and surprising thing happened. The day of the surgery I was sitting in the surgical waiting area with my family, and a woman came up to me and said "Are you Lori?", I said yes, and it was DEJ from this website! She lives in Madison, her husband had Ron's doctor also, and she just came to say hello and give her support. That is this website in a nutshell. I hope someday I can be there for someone else. It was so kind of her to make a special trip just to let me know that she was thinking of us. Love the OCF!
Lori