Stephany,

I am sorry I have been away for a bit but I want you to know that I have prayed often for you, your mother and your family. I truly feel your pain and I remember the anguish as I traveled this road with my mother. I hate to see your plate so full of so many things that would be tremendous stress if experienced one by one.

Have you asked hospice for an aide, too? They sometimes provide someone that will come and even massage your mother's feet. It may sound like a small thing but I remember vividly the smile on my mother's face and how she told me how wonderful it felt to be "pampered".

With Love,

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023