Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Well I wasn't a large guy, at 5'6" and 169 lbs going into it. I dropped to 109 lbs after treatment was over. I did it without a PEG, but it was VERY difficult so I am not advocating this. I am happy with my new weight of 145 lbs. It wasn't the weight loss that was the problem - it was the atrophy of all of my muscles and the time required to get upper and lower body strength back to an acceptable level. We can all stand to loss the fat.
Congrats on 2 1/2 years Weldon - I'm right behind you.
Stephany - they can increase the (Fentanyl AKA Duragesic) patches to 300 mg if necessary.
Iressa may be worth trying - it is supposed to have few toxic effects as it targets the EGFR in the tumor cells themselves. Please note that only 10% of people who take Iressa have any response but those that do have had rather dramatic responses. Total cure in some cases.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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