Hi Patti,

I see you are from NJ also, where did he have this surgery done? Was it at a major cancer center? Depending where in the state you are there is FOX CHASE in Phila and MSKCC in NYC and JOHNS HOPKINS isn't that far away. I'd definitely get a second opinion. Having said that, however, I
was not treated at any of these, but at U of P. I had never heard of FOX CHASE until recently. Does this particular cancer not respond to radiation or chemo? Why are they not suggesting that?

I find it appalling that that had to 'bump into the dr' to get this news. When had they planned on telling you? I also was never quoted statistics, but then was never in a situation where the expected a reoccurence.

I too think Joe should be told. Only he can know what agenda he wants to follow if his life is suddenly to be shortened. I would certainly want to know so I could make decisions about what treatment I would follow or possibly none, depending on what was involved.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I