This is a very good thread. I am going through the same issues as others...worrying about the sleeping, slow progress, etc. He is almost 6 weeks post treatment and we both had expected him to be further along by now. I don't think the doctors adequately prepared us - maybe they didn't want to discourage us since we were so looking forward to the end of treatment.

I think that the other dynamic that sets in for caregivers is exhaustion. I know that in my case - and I assume everyone elses - I have had to take over doing all the things my husband used to do as well as keeping up with what I have always done. Then there is the insurance mess to wade through and the added financial stress of being the only wage-earner. By the time I go to bed at night, I often wish I would just quietly die in my sleep. Then I get up the next morning resolved to do the best job possible coping with what has been handed to us.

Here is quote from Amelia Earhart that I like: "Courage is the price that life exacts for granting peace."

Anita