I'm sorry to hear some of your news, Paul, although I know you aren't looking back! I was a little worried about the traps and the rhomboids. Did they address something for the head drop. It often happens when the sternocleidomastoid muscles fibrose or "cord out" like strands instead of muscles. When that happens it continually tightens and pulls the head forward more and more. It's called spasticity. Then the long muscles in the back of the neck get too weak trying to fight the head dropping forward.
There's a great brace that helps the head stop dropping and gives a lot of relief to the back of the neck. One is called the Headmaster. I have one if you would like me to send it to you.
As far as brachialplexopathy, been there done that, too. The ART people completely resolved it. I guess I forgot to out that in my signature. If decided to limit that to just the terminal diagnoses, which reminds me I need to add Life to the list of those. I just don't know what date to out on that one. lol
Hang in there, sir! Nothing but love and respect for you. I've said it a number of times, but I would never have tried as hard without being inspired by you. If there is anything I can do for you I hope you know I would, will and am here.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
