You bring up an interesting point. How do we, as a community, offer things like this? I, for one, have found many opportunities for products that have been found to be successful for me and I get special deals or incentives but have yet had anyone here even make an attempt to take advantage. I know this because I even post promo codes at times to track and check back with suppliers to discover no one moves forward.
There has to be some more defined process that takes into consideration the rules of OCF, the advantages to members of the forum and yet still provides a potential benefit to survivors. I realize it is a fine line but Brian cannot be the sole person to try everything and make recommendations. For one, he doesn't have the time but, more importantly, the products in question may work for only a small group similar to medicines.
As a user of the forums, I have not had any of my recommendations deleted in 10 1/2 years. I fully understand having controls in place to prevent us from being advertisement driven and a willing pool of consumers for any company to just take advantage of.
We are a bunch of pretty intelligent people and between all of us we should be able to come up with something that works. After all, we are all in this together.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
