WOW Brian. This is exactly what I am looking for. After over 5 years, I'm experiencing things worse now than I did while having treatments and several years afterwards. It's bedtime now, but will write more and ask questions of others later this week. I think this type Forum will help me and others. I've written you, Christine, and Eric about some of my problems, and will have a place now for others who may have similar problems and can make suggestions. Thanks so much.
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer