Lori,

So sorry for the recurrence - once should really be enough. My story is similar to your husband's. Diagnosed in 2006 with floor of mouth cancer. Had surgery to remove it and a skin graft from my left thigh. I went through radiation with no troubles and a positive attitude that all of the nurses just loved. Whne they see me cry now they put their arms around me and I am sure that they wonder where that smiling girl is.

In June this year I was diangosed with recurrent floor of mouth cancer, tongue and possible mandibel. My surgery is scheduled for 9/25 and I will start a blog this week so that my friends can stay up-to-date, Possilby you would like me to e-mail the blog address to you after you see what type of surgery I am having if it would help you and your husband,

They plan to remove the left half of my tongue and replace it with skin and arteries taken from my right forearm. I developed blood clots in the left arm when they put my port in so it can not be used. They plan to try to take only the inside of my mandibel, but could have to take it all. The plastic surgeon says that I am not a candidate for the replacment with the bones from my feet due to poor circulation. But they may have to do it and hope for the best. I had the radical neck dissection with my first surgery in 2006 and the nodes are still clear.

Well in a nutshell that is about it. If you think keeping up with my progress would help you and your husband just e-mail be privately and I will send you a link to the blog,


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace