#37092 02-04-2004 09:02 PM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Oct 2003 Posts: 89 | Hello Lorie,
What a tough, slow healing process your husband has had.
My cancer was on my tongue - had 1/2 my tongue removed in September and finished radiation about 5 weeks ago. I definitely had an easiler recovery, but I did have trouble with that thick saliva gunk, making sleep very hard.
I had a prescription cough syrup - guafensin (robitussin) with codiene that helped. Also the hydrocone/lortab I had for pain enabled me to sleep more than 2 hours at a time. I had to sleep in an almost sitting position with 3-4 pillows propped under my head and shoulders. Also kept (still do) a very large glass of water or water bottle next to the bed. I used a humidifer for moist air.
During the day warm drinks help to thin the thick saliva. I quickly went back to coffee (compared to other food & drink), also herbal teas, thin soups or just warm water. I didn't like drinking Ensure because it would make the mucus thicker. I liked soymilk, it was thinner than regular milk or Ensure. Recently, I added Ensure (chocolate or butter pecan flavor) to my coffee which made a nice treat and thinned the Ensure making it easier to drink.
Yogurt, soy milk and ensure was about all I could handle at the end of radiation when my tongue and throat were burning. The yogurt may help with thrush because of the yogurt cultures. I had/have to avoid most acidic/citrus/tomato. Also spice and pepper are hard. I have to drink at least 4 large cups of water per meal to swallow food, I also have physical troubles swallowing due to losing have my tongue. I kept an open can of chicken or beef broth around to add to foods - like meat or vegetables, potatoes, etc to help make it easier to swallow.
I hope some of this helps, i'm getting a little sleepy and not sure if I'm making any sense. I'll try to add more tips if I think of them. Hang in there, michelle
ps Another vote in support of anti-depressants (I take a selective seratonin reuptake inhibitor called celexa and have found that it keeps me upbeat, and I see a therapist)
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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still not eating, 13 weeks post treatment
| Lorie | 01-22-2004 05:24 AM |
Re: still not eating, 13 weeks post treatment
| Mark | 01-22-2004 09:12 AM |
Re: still not eating, 13 weeks post treatment
| Pumpkin | 01-22-2004 12:19 PM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-22-2004 02:34 PM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-22-2004 02:48 PM |
Re: still not eating, 13 weeks post treatment
| karenng | 01-22-2004 09:56 PM |
Re: still not eating, 13 weeks post treatment
| Gary | 01-22-2004 11:21 PM |
Re: still not eating, 13 weeks post treatment
| Mark | 01-23-2004 12:06 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-23-2004 06:08 PM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-23-2004 09:20 PM |
Re: still not eating, 13 weeks post treatment
| minniea | 01-24-2004 12:11 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-24-2004 02:18 AM |
Re: still not eating, 13 weeks post treatment
| Gary | 01-24-2004 06:42 AM |
Re: still not eating, 13 weeks post treatment
| Mark | 01-24-2004 02:59 PM |
Re: still not eating, 13 weeks post treatment
| Gary | 01-25-2004 03:13 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 01-26-2004 09:05 PM |
Re: still not eating, 13 weeks post treatment
| Mark | 01-27-2004 12:58 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 02-03-2004 12:51 PM |
Re: still not eating, 13 weeks post treatment
| Gary | 02-03-2004 05:39 PM |
Re: still not eating, 13 weeks post treatment
| JetAgeHobo | 02-04-2004 01:51 AM |
Re: still not eating, 13 weeks post treatment
| michelle41 | 02-05-2004 04:02 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 02-06-2004 02:58 AM |
Re: still not eating, 13 weeks post treatment
| Gary | 02-06-2004 03:58 AM |
Re: still not eating, 13 weeks post treatment
| Lorie | 02-23-2004 11:57 PM |
Re: still not eating, 13 weeks post treatment
| Joanna | 02-24-2004 01:06 AM |
Re: still not eating, 13 weeks post treatment
| digtexas | 02-25-2004 11:42 AM |
Re: still not eating, 13 weeks post treatment
| VickieM | 02-25-2004 04:19 PM |
Re: still not eating, 13 weeks post treatment
| minniea | 02-25-2004 04:37 PM |
Re: still not eating, 13 weeks post treatment
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| 02-25-2004 04:43 PM |
Re: still not eating, 13 weeks post treatment
| digtexas | 02-27-2004 09:06 PM | |
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