Hi Lorie,

I am sorry that the Nystatin didn't help.

That you have a dentist that specializes in oral cancer is really great.

As for his shoulder and arm pain, I had that and even recently have had shoulder pain. I had a radical neck dissection as well as the tonsillectomy and radiation. Much of my shoulder pain has to do with the surgery. Radiation is the gift that keeps on giving and some muscle pain is a possibility (starts in the neck and moves to the shoulder and back).

Please do mention all of the things that bother you to his oncologist. The troubles he is having are worse than some folks had but not outside the experience of several people here. It did get better for them, and I truly hope he starts to feel better soon, and let him know those feelings of doubt he is having are also common.

Take care


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.