Christine has given you great advice. I'm adding a few things from our experience.
Before starting treatment, my husband sought out a second opinion at a CCC. The team brought up the PEG issue. They emphasized that some patients are physically unable to safely swallow at some point during treatment. They emphasized that it is not always a matter of will. I don't understand threatening a patient about this.
My husband had PEG placed before tx. He started using it after week three. He lost zero pounds because of it and I believe that helped him recover. He is able to eat all foods with liquid.
Hope you are able to get this resolved, Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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