 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Leonard, I just looked back at your initial post. Three or four weeks into treatment is still early days. You may find that as you move forward, it gets even harder to swallow. Have you been fitted with a PEG tube for nutrition? John was eating and drinking until about the third week into treatment, then it just got too difficult to even swallow a couple of sips of coffee.
The effects of radiation are cumulative, so you will notice the effects much more as you get more treatment. Can you at this point manage a poached egg, some yoghurt or some soup?
Do you have the support of a dietitian at the hospital? He/she will be able to help you decide what's best for you in your circumstances so that you can stay hydrated and receive the amount o\f nutrition you need.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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