 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Stacey, May I suggest that you go to the meeting with the MO with a list of questions, e.g. Is the radiation preventative or is it treatment, what grade/stage the tumour is at, etc. the kinds of questions that you believe your husband needs to hear, so he gets to hear the answers from the horse's mouth .
When you see the RO, one question you could ask is whether the radiation field used in your husband's treatment will impact his voice in the long term or is the voice loss just temporary. Also ask what percentage of the RO's patients have actually lost their voices. Get the doctors to be specific.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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