Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Paula, You and your husband have been in my thoughts as well.
I can't give a lot of good advice but when you asked "how will I know when to call hospice?" it made me wonder if you have talked to anyone at your local hospice at all yet. If not, I would say do it as soon as possible. They know a lot about pain control as well as so many other things. They are not just people to bring in at the very very last minutes but people who can help him live all the time he has up to those minutes in the way he wants with minimal pain. They will also just help you feel much less alone. Although this board can also do that, it's good to have support from more than one place right now.
You'll remain in my thgouths and prayers
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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