Sounds like things are improving on the home front. Don't get too impatient. Things will happen as fast as you hope and push, but be cautious if possible.

In the past 4 years I went from bedridden to 50 miles a week on the bike to thoracic paraplegia in a motorized wheelchair to 90 miles a week on the bike. 2 years ago I had no swallow and no digestion and too ill for a feeding tube or laryngectomy for breathing. I slept with a ventilator for months. I still have to use manual override to breathe, often. I aspirate most things I eat and live with pneumonia during the cold months.

I don't consider any of that as a limitation. My erratic voice and lack of back muscles that keep me from sitting up for very long are the biggest reasons I can't work, but I am still trying to find something to bring money in. It appears we may lose everything in the next year. Some things are just out of our control and we have to play the hand we're dealt.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023