Bob, I have had that thick goo for 6 years now and it even chokes me when I sleep which shuts off breathing. It has been the hardest thing to manage, by far. I hack blood, sometimes by the mouthful, and have for 6 years. It worried me long ago but it's just life now.

My wife walked away from "the patient" about 5 years ago, but started withdrawing as soon as she heard the words, "No treatment, not reversable, no cure." I try to empathize but it is tough at times. Hopefully, this will be behind you soon. From our eyes, the world didn't really change. Seeing the angst and tears from those I know is a constant reminder that I have radically changed in appearance.

Hang in there, it may take some more time.

Best wishes always.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023