Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 5,260  |     Ingrid,  you sound like a good fighter. Hate to say wewlcome to our home, but it's the best place for understanding people. Most are knowledgeable too.  That is a great question Sam. But it happens and we just have to accpet it and go on with treatments. It's possible that in the future, you will have reactions to a few things that you have been thru. We play a crazy game with OC but can win the battle.        
     Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan.  I averaged  about 2 to 3 surgeries a week there.  w  Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube .  Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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