Oh how I wish my taste buds would come running home. I guess I am thankful for being able to taste the 1st bite. It lets me know I'm not chewing and old shoe that was discasrded. The burning of the mouth never lets up but you can learn to ignore it with some magic Mouthwash numbing doing it's job. One thing for sure. As long as we feel the misery, we know we are alive.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here