"OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | Hi Nathan,
I have just finished 34 IMRT and 3 Rounds of Cisplatin - 5 weeks now. I did not have of PEG. I have to admit it was very hard but i managed. I ate in the bathroom (and still do!!) with a glass of water in one hand. Basically quickly get a few mouthfuls of food down before it starts to sting and quickly rinsing my mouth with water. I then rest for a few mins and repeat the process until the food is done. At times i was on my knees crying from the pain but i persisted and lost about 6kg at the end of the treatment. PEG wasnt even offered to me so i didnt even know about it until i joined this forum!
You sound like a strong and determined kind of person so i think you will do fine with the treatment. The first few weeks arent so bad, like my ENT said "its the last 2 weeks of treatment and the 3 weeks after treatment that is the worse". Physically i've been doing great and only had about 3 weeks of feeling really bad. I'm now only having trouble dealing with the "mental" side of things.
Good luck with with treatment. I'm sure you will do fine!!
Minb
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
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