OP "OCF Canuck" Senior Member (100+ posts) Joined: Mar 2010 Posts: 126 | Hi Kelly, No, he doesn't have the tube yet. My main concern is that I can't get the high calorie/protein stuff like Boost, ice-cream, pudding into him. It all seems to be too rich for him and gives him the runs. This leads to weight loss, dehydration and another step towards the tube. It's not his fault, it's just the way his digestive system is. And being pre-diabetic complicates things somewhat.
His ability to tolerate anything that isn't soft is nil. And some things you'd think would work, like canned pears and avocados seem to hurt his tongue.
I guess it's trial and error all the way, and I just hoped it wouldn't get this bad for him so soon. I will keep looking for suggestions - this is a great board and everyone is so helpful and nice.
Thanks so much for your comments. Anne
Anne - CG to Gordon (59), non-smoker/non-drinker. SCC, BOT, HPV 16+, stage 3. Jan./10 - radical neck dissection to remove 48 lymph nodes, 1 node pos. Apr. 23/10 - finished 35 rad. and 3 cisplatin. Jul. 22/10 - PET scan clear.
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