Anne,

I hate to say this but from here on out eating becomes more like a job then a pleasure frown. It is a game of what is tolerated and what is not, as you are finding out. You will find that he will be moving toward softer foods (pasta) and more bland foods.

I did not get a PEG and eventually was down to scrambled eggs, pate� pancakes and the like and even spent the two weeks after treatment on liquids only (Boost, Carnation VHC etc�) Eating was painful.

As he moves the other way after treatment, the whole process reverses itself and more and more things become edible and then even pleasurable to eat again grin.

The one consistent thing you will find among all oral cancer patients is the eating issue. This is a great place to come for eating suggestions and you will get a ton of responses.

Did Gordon get the PEH tube?

Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR