Heike, do not, for even a moment, think that you are selfish. If you get sick, both you and Simon will need looking after. If you look after yourself first, then Simon will get the care that he needs from you. If he is falling down, I would take him to the hospital to have him checked over. It may be he is dehydrated or he needs more nutrition. In any case, the doctors will be able to tell you what it is. While you are there, can you get the doctors to read Simon the riot act -- let them tell him that he is endangering his own recovery.

The not-eating and drinking is a story that I heard over and over while John was undergoing his treatment. Every time we were in the Radiation Nursing Centre, there was bound to be at least a patient there who had to be told by the doctors that unless he/she ate, there was nothing the doctors could do for him/her. Even the doctors and the dietitians were getting frustrated with the hard-headed patients on a regular basis.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.