The privacy laws can be infuriating. When my husband was diagnosed, at his first visit to the RO's, they actually had to checked with him that it was all right to talk to me if they needed to call. Some people do not give that permission, which I find weird. The doctor could not tell me my husband's prognosis without my husband's permission either.

I think Christine's suggestion is a good one -- get family help instead. Is there a pastoral/counseling unit at your hospital? Can they help?


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.